Lessons for our Birthday
September 15, 2013
As we celebrate the 2nd birthday of Spread A Little Joy, I find myself reflecting on all of the amazing people we have met these past two years, and how much they have changed my life. While also reflecting on the lessons I have learned along the way, I thought I would share a few with you.
Joy for All
“We could all do with a bit more joy in our lives,couldn't we? The wonderful thing is that when we start spreading joy, we actually begin to experience more joy in our own lives too!"-Steve Goodier
When I first started SALJ, I
naively thought we would be merely helping others who had suffered like my Mom.
Little did I know, granting wishes would end up bringing as much Joy to me, and
to our many, many Dreammakers, as it does for the Dreamers. We have heard: “This
is the best experience I’ve ever had in my life!” or “If I had known how
gratifying this would feel, I would have done it so much sooner.” and “I think
this experience has changed my life!” Sounds like quotes from our Dreamers,
right? But guess what? They are from our incredible network of Dreammakers, the
people who have helped us make dreams come true.
Reaching out, giving your
time, your skills, making connections, even donating money towards a particular
Dreamer’s wish that touched your heart or moved your soul, and then watching
that dream unfold and bring HOPE and JOY into someone’s life changes you. You
are helping to create someone’s moment: a moment that will become a part of a
family’s history. It is the gift that keeps on giving, for everyone involved.
Everything Changes…Except the person
Sometimes there's just comfort in the ordinary: the old
slippers, the robe, the morning routine… so many things.
Learn to appreciate the ordinariness
I sure do with each day. –Joy D. Brown (written by Joy one month before she
lost her own battle)
Every Dreamer we meet is in
a battle, the battle of their life to be precise. Their families have rallied,
their friends, neighbors, and coworkers all step up, ready to ease their
burden, help in any way they can and they appreciate it all, probably more than
they even know how to express. When someone we care for is sick or hurting, we
want to help, to coddle and to protect, and we should. However, we cannot
forget that our loved one is still the same friend that we teased yesterday
about being too overprotective, or the coworker we take for a beer after work,
or the neighbor we sit in the driveway with as our children play.
If you read
our FB page, you’ve probably read the thoughts of one of our first Dreamers who
said it best, “It’s just a disease, it didn’t steal my identity.” Even though
they are sick, weak, or tired, we need to try to remember to still see the person,
not the disease. Don’t change the way you relate…if you’ve always called them
to hash over last night’s Grey’s Anatomy or to vent about your spouse,
children, mother-in-law… continue to do so. Because, while everything else is
changing in our Dreamer’s lives, they are still the same person they were
yesterday, and that may very well be the only consistency they have right now.
It’s my party and I can
cry/laugh/get mad if I want to!
Everything can be taken from a man or a woman but one
thing: the last of human freedoms to choose one's attitude in any given set of
circumstances, to choose one's own way.-Victor Frankl
When my Mom was sick, I
often became frustrated with her reactions. I am a worrier by nature- a typical
Type A (is there a type AAA?!) who analyzes, over analyzes, and then
reconsiders every possible scenario and outcome. My Mom, on the other hand, had
this amazingly positive, ‘when life gives you lemons, not only do you make
lemonade, but you throw a party’ attitude! As we went through her diagnosis and
subsequent treatments, I was frequently concerned and even impatient with her
carefree attitudes. After researching her latest chemo regime, I was worried-
shouldn’t she be too? When her appetite waned, I became anxious and encouraged
her to eat, while she joked about how she was sexy skinny. I rarely saw her cry
and get mad, but even when she did, it was not at the situations in which I would have expected her to be upset.
Therefore, I worried about that. After she passed, I realized the attitude that
she had her entire life - the upbeat, happy-go-lucky vibe that she kept even
during her illness- is probably what kept her going and enjoying life literally
up until the very end.
After spending time with Dreamers and their families,
I’ve learned this: they need to be able to react however they choose. Don’t
feel bad if they aren’t happy, sad, tearful, or mad when you would expect them
to be. If they handle the upheavals of their current situation with grace and a
smile on their face, but break down in sobbing tears because their McDonald’s
French fries are cold, that’s okay. And if they don’t get mad at this nasty
disease that has changed their life, but get seriously ticked off when ‘The
Bachelor’ is preempted by a baseball game, that’s okay too.
Listen. Really, truly, listen.
“But there's a story behind everything. How a picture got
on a wall. How a scar got on your face. Sometimes the stories are simple, and
sometimes they are hard and heartbreaking. But behind all your stories is
always your mother's story, because hers is where yours begin.”
―Mitch Albom
There are stories to tell.
Histories to learn. I think this may be one of the most valuable lessons and
certainly the easiest to do. Whatever you are doing, stop right now, and have a
conversation with your mother, your father, your grandparents, whoever connects
you to your past. We are disconnected these days. I can hear you saying, “What?
We aren’t disconnected! I haven’t seen you in ten years but I’m reading your
post!” Not to sound ancient, but I am talking about in person, face to face,
lips moving, heartfelt interaction. Kids and parents today communicate and keep
in touch by texting, emails, FB, twitter and now, without words, they use
photos to express feelings by SnapChatting! This is all great and a fantastic
way to stay in touch in this busy world and honestly, without it, Spread A
Little Joy wouldn’t be able to do what we do. But we have lost the art of
reminiscing...
Some of my fondest memories are of my grandma telling stories of
her childhood as an orphan, how she and her sisters survived the often cruel
orphanages at the time, how she and my grandfather met, and her, always
entertaining, memories of raising my Mom and Uncles. These are the hidden
pieces that make us who we are. The Dreamers we meet have fascinating stories!
It doesn’t matter how old or young they are, trust me, they know things you
don’t know.
We fulfilled a Dream for a woman who wanted a reunion with a long
lost loved one, who was mostly unknown to the rest of her family. We have had
dream requests from people that just want us to help them tell their story. Sometimes
they don’t know how to express their feelings, or maybe they think their loved
ones don’t have the time or interest to sit down and hear all of their memories
of days gone by.
Someday, you will wish you knew who those people are in that
faded photo your Grandma keeps, who taught your Dad to throw a football with
his arm angled just so, why your Mom started calling her brother by a silly
nickname that has now stuck for 40 years, or why a certain habit seems to be
passed down from one generation to the next. Talk to your family. Another
thought…write down or record what they tell you. Priceless.
These are just a few of the gifts I have received from Spreading A Little Joy. I have learned that JOY shared keeps giving back. I’ve learned that it is important to talk to the Dreamers, to hear their thoughts and to understand their feelings about this challenge they are coping with and why their special wish is important to them. And I have learned to look past the illness, to see the person. I cannot wait to see what our next year of SALJ holds. As we grow, I continue to be thankful for our backbone: our Dreammakers, without whom, there would be no Spread A Little Joy. From the bottom of my heart, and from all of us here at Spread A Little Joy, we wish all of you a Happy Birthday! Thank you for letting us be a part of your lives.
Posted by Lara Stanze.